"Momma? Whatchoo want?"
"Oh, I'd love some berry pie." I replied.
"Okay, how you spell 'berry'?"
"B-E-R-R-Y" I said, slowly. She stuck out her tongue, the purple marker grasped in her chubby fist.........
"This right momma?"
Miss Avalon can write her letters. All by herself. I didn't guide her hand, I didn't tell her how. She did it, my almost-five-year-old did it. It's a milestone that OTHER almost-five-year-olds are reaching right at the same time as her and my heart is so full of joy.
When you read about 16p11.2 microdeletion syndrome online, it can feel very scary and overwhelming. Websites like this one claim that "Individuals with the deletion have an intelligence quotient that is on average 32 points lower than that of controls." Intellectual disability and learning disability are very common. Psychiatric dysfunction and disease are also extremely common. I don't know what the future holds for Avalon, or Poppy, or Flynn. I won't know until the future happens. But I know, at this moment in time, that Avalon will read and write, and that thought makes me feel like I will explode with happy stars pouring out my heart.
I type this through happy tears, but I know that even if reading and writing wasn't a possibility for my beautiful daughter, it would be okay. I know that as a mommy who is raising a child with unique chromosomes, I need to take a step back from the medical journals. I need to take a step away from reading about genes, and mitochondria, control studies and knockout mice. I need to look at the child in front of me. She is gorgeous, and happy, and capable. She is EXACTLY who she is supposed to be. They all are. Every soul who is born into this world.
I have been given three souls to shelter. I do my best and I fail and fall often, but I am so, SO proud of these little souls. All of them hardworking, struggling, growing in amazing ways. Some of us are born with our struggles so obvious that an observing stranger can see them. Avalon was given this burden, but we are all born with struggles. Flynn, who is shy and so hard on himself, Poppy who is a perfectionist and often isolates herself inside her own head. I am so blessed today and every day. Growing a person, and trying so hard, and hurting and feeling guilty and inadequate and EXHAUSTED, all of those things are woven into these moments of pride and exquisite happiness. A beautiful day. A daughter who can write "BERRY". That is what it means to be a mommy, and I couldn't have asked for three more perfect people to give me that title.
Happy Mother's Day everyone :)